From Chris Brogan via JP, a call to re-tweet: Sew hoping for a miracle.
Here is an earlier picture (and post about) Marielle, by her mom, the blogger Sue (aka Sew), of The Domestic Diva.
Marielle is dying, literally, for a kidney match.
Pass the word along. Somebody somewhere should be able to help.
Tags" kidney, "kidney match, "The Domestic Diva", Marielle, Sew, Sue
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November 24, 2008 at 3:40 pm
Michael Fraase
Assuming that only the normal co-morbidities (high blood pressure, severe anemia, problems with potassium and phosphorous, hyperparathyroidism, etc.) are present in her kidney failure, Marielle is decidedly *not* dying.
End-stage renal disease (permanent kidney failure) is not a terminal disease. Nor is it curable. But it is treatable, most commonly with dialysis or transplant.
I wouldn’t wish the condition on anyone — I’ve been an end-stage renal disease patient on dialysis for almost nine years — but it’s not ordinarily a terminal condition.
All that said, I hope she finds a match.
November 24, 2008 at 3:56 pm
Michael Fraase
Whoops — I meant to add this to the previous comment.
If Marielle can’t find a match there’s a relatively new option she can try:
Consider Marielle recipient A
Consider Marielle’s potential donor (who can’t donate to Marielle because s/he isn’t a match) donor A
Consider recipient B the person for whom donor A is a match
Consider donor B to be a match for Marielle
Donor B donates to recipient A
Donor A donates to recipient B
This is called paired donation and there’s no reason why it can’t get mathematically quite complex.
November 25, 2008 at 2:26 am
Jason
Hi my name is jason, Im 20 years old and very athletic I dont do drugs or drink and I am considering donating a kidney but Im nervous and wondering what kind of compensations would be involved with a transplant?
November 25, 2008 at 5:17 am
Doc Searls
Jason, the only compensation I know of that matters is the satisfaction of knowing you have made a sacrifice to help a fellow human being.
But if it’s money you want, you can look it up.
November 25, 2008 at 12:49 pm
Jenn
I’m type B POS. If I’m a match, I’ll donate. My grandfather needed a kidney for years. He recently passed away, and I am a complete organ donor if anything ever happens to me. However, I am in good health and military. I am more than willing to give up a kidney. I certainly only need one.
November 25, 2008 at 12:51 pm
Jenn
Also, I don’t expect any compensation. By mentioning the military I meant that I have health insurance. I would need to double check coverage, but I’m sure that donating an organ can’t be exactly frowned upon.
December 3, 2008 at 3:26 pm
Rob Morales
A kidney donor was found. An interesting take on the Twitter aspect can be found here:
http://www.youruinedmychildhood.com/blog/2008/12/2/whats-the-f-ing-point-of-social-media.html?lastPage=true