June 19, 2008

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WERS rolls

Finally ready to listen to a little radio. I gotta say that it’s pretty freaking hard to beat WERS. “Music for the independent mind.” Yes indeed. I’m not familiar with most of the music they play, but I like a helluva lot, especially since I’m sure I’m 3x the age of many of its programmers and listeners.

Right now it’s Yo La Tengo with “Take Care”. Take care not to hurt yourself. Be ready to ask for help. Thanks for that. Right now it helps. Before that it was Thao with “Bag of Hammers”. David Bowie’s outstanding “THV 15” ran before that. Was that Dr. John on piano? Before that Coldplay with “Speed of Sound”. Now it’s Gnarls Barkley: “Who’s Gonna Save My Soul”. They’ve been playing that one a few times. Deservedly. And now, for geezers like me, Van Morrison with “Caravan“. Radio. Turn it up. So you know. Radio. Takes me back. Keeps me up. From the Moodance album. 1970. Also The Last Waltz. Gives me chills. Progressive rock stations loved to play that song, mostly because it spoke from original dream of radio. What it was, and what it will be again, better than ever. Thanks to WERS for holding the flame high.

Man, this goes on. Now it’s Leonard Cohen with So Long, Marianne”. Another perfect oldie. Followed by Cat Power, “Aretha, Sing One For Me”.

[At this point I got a call from Steve Gillmor, and we recorded a brief impromptu podcast. I'm fading now, and heading for bed. Night, all.]

Differences

Everybody’s different. That’s the problem. Medicine and medical care, however, isn’t about that. They treat templates. Differences are accounted for, such as in my case, where I had a 1-in-20 chance of developing pancreatitis. But I weighed the odds, signed the consent form, and got to be that 1. So differences still matter. None of us is a template.

I’ve always had hunger pains. These were different from the feeling of hunger but they came at the same time. Certain other family members also have them. I’ve looked many places on the Web for answers to what my hunger pains actually are, with slim results. “Stomach acid” is the main suspect. But other people have that when they get hungry too, without the pain. What’s different in my case? The doctors say “That’s a good question”. Whenever somebody says that, they don’t have the answer. Would this condition have suggested that I might be sure to get pancreatitis if the inside of my pancreas was probed? I’d say yes, because that’s just instinct. I don’t know.

I tend to be prone to minor problems with what TV ads used to call “irregularity”. In both the liquid and solid directions, if you know what I mean. Was this a harbinger as well? Especially since I had spent more than a week prior to this event fighting irregularity of the liquid sort? How?

Anyway, pancreatitis in me was manifested, principally (though among other symptoms) by hunger pains in the extreme. Without the hunger. What does that tell us?

And what does it tell me now that my hunger pains (which are now associated with pancreatitis) are accompanied by actual hunger — not a lot of hunger, but some?

So, I have questions. Which means I’m feeling better. I still have a long way to go. Four bags of fluid now drip into my left wrist, and six colored wires run from a heavy portable telemetry unit to sticky tabs on my chest and back. I keep a spitoon by my side and dose my bathroom visits with choreographic precision, since wiring and tubing management — not to mention work with craphats and pisshats — makes every vist a complicated ordeal.

As of tonight I will have gone a week without a meal. And the end is not in sight. Yet.

No jokes

[Note: I wrote this yesterday, 18 June. But the blog wasn't working. Now (1pm, 19 June) it is.]

Yesterday, when I started feeling better, I had dozens of one-liners about the absurdity of hospital life. Crapping in “hats” for example. One’s humor gets low here. Mine especially. It also helped to have friends stop by, chew the fat and joke around.

But by late evening I was at the “one step back” stage, after two forward. Since then, lots of pain, barfing, discomfort and worse.

I’m maybe getting better now, at least in some ways. I also have so much “fluid retention” that I look like the Michelin guy. My weight is now well over 200. I’ve never broken 190 before and was dropping below 185 when I got in here. Given the fact that I’m eating my body rather than food, who knows what my “real” weight is, other than absurd in any case.

Finding the time, and the means, to take or make calls is nearly impossible. Blogging and twittering are hard too. So this is a group message of thanks to all who wish me well (and there are so many of you… I’m lucky that way). Not sure how much more can be done. I am sure that the hospital folks and local relatives and friends will try to do it.

And we’ll see how it goes.